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Downside Up's experience of developing remote family support during the pandemic announced at EDSA General Assembly

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This year, the annual general assembly of the European Down Syndrome Association (EDSA) was held online due to Covid-19. EDSA brings together organizations from all over Europe to improve the lives of people with Down syndrome and their families
This year, 42 experts from 27 countries representing organizations specializing in Down syndrome, took part in the meeting. One of the goals of EDSA is to share experiences, best practices and support each other with information and experience.
During the assembly, experts voiced and discussed projects aimed at supporting people with Down syndrome in education, early intervention, scientific and medical research and, of course, changes related to Covid-19, which affected all helping organizations.
Tatiana Nechaeva, Director of the Downside Up Family Support Center, shared her experience of the Downside Up Foundation during the pandemic with colleagues. During her presentation “Support during the pandemic,” she told colleagues about the work of the foundation aimed at expanding remote support for families during self-isolation. Downside Up Foundation has gained extensive experience in online consulting, which helped the Foundation's specialists to quickly switch to the support format dictated by the new circumstances related to Covid-19.
Also, the topic “Covid-19 and Down syndrome” was devoted to the presentation of Professor Em Jacqueline London from “AFRT France” - “How people with Down syndrome face Covid during the first pandemic”. She introduced her colleagues to the results of the international study and the AFRT study on morbidity risk factors.
The next EDSA expert meeting is scheduled for November 2021.