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Downside Up Media Lab film “Jokers and Jokes. Ku-ku, my boy ”- recognized as one of the best comedy films at the International Film Festival in St. Petersburg

Short film “Jokers and Jokes. Ku-ku, my boy ”, created by the participants of the Downside Up media laboratory, received the 3rd degree Laureate Diploma in the nomination “Best Comedy Movie”at the III International Cinema Kids Film Festival.
The festival's motto is "Children make movies for children!” - it involves films that children and teenagers create for their peers, trying themselves as screenwriters, actors, directors. This year, the festival jury evaluated about 450 children's works created in St. Petersburg, Moscow, Novosibirsk, Yoshkar-Ola, Belarus, Kazakhstan, Estonia and the United States.
The Downside Up media laboratory film is the second part of the “Jokers and Jokes” movie project. “Jokers and jokes. Ku-ku, my boy” is a humorous sketch in the silent movie genre about how schoolchildren can help each other out of a difficult situation with humor. Students of the media laboratory themselves invented and developed a script. The team of the media laboratory led by its presenters - Anastasia Kaleusheva and Nina Ivanova - helped them realize their plan and remove the plot invented by the guys with the authors of the script in the title role.
Anastasia Kaleusheva, leading Downside Up media Lab:
“I would like to note that the festival had a very competitive environment. This is not an inclusive festival, which is also important, the cinema made by our laboratory assistants competed with the very strong works of children and teen-agers from all over Russia and the world. And for us, teachers of the media laboratory, and for our children, such an assessment of activity - outside the framework - is doubly valuable and important. This diploma can only be obtained for a professional approach to working on a film, without any discounts. ”
The media laboratory team continues to work on the film project "Jokers and Jokes." In the nearest future a new short film "Jokers and jokes. Circus” is preparing to be released.

Downside Up working hours and how to make an appointment with us

Dear parents!
Our specialists are ready to provide you remote support, regardless of where you live!
Contact us - the free fund number is 8 (800) 550-54-97 (from 10 to 18 Moscow time on weekdays) or write to us at info@downsideup.org, we will give feedback definitely .
From May 1 to May 5 and from May 9 to 11, 2020, the fund has days off.
From May 6 to 8, Downside Up works on a regular schedule. These days we will hold consultations.
If you have questions about how:
- Organize daily activity of a child / teenager / adult with Down syndrome
- Organize classes at home;
- Build communication and interaction with a child / teenager / adult
- Help a child / teenager / adult regulate behavior
- Help the child / teenager / adult to be independent
- Get psychological support
- Any other requests
We will be happy to support you and your family members!
Services are provided to families free of charge.

Read "Take a Step"

Dear friends!
The next issue of Downside Up’s magazine “Take a Step” is available for reading on our website.
The regular sections “Doctor's Tips”, “Teacher's Look”, “Psychologists about Children and Parents”, “Parent Tribune” and others are waiting for you. The current issue of the magazine differs from the previous ones – parents of special children were very actively involved: mothers of many children Anna Kryuchkova and Irina Plotnikova, adoptive mother Valentina Yakovleva, blogger and mother of the “sunny” Pasha Oksana Safaryan. And even an article in the section “Doctor’s Tips” was written by the mother of a boy with Down Syndrome - pediatrician Alexandra Shasheleva. Parents also sent photos to be published in the magazine and actively participated in the survey, which was described in an interview by the head of Downside Up Strategy Department Alexander Borovykh.
Other materials of the issue are aimed at practical support for parents.
So, in an interview with dietarian Natalia Taran, readers will find specific recommendations on how to draw up a diet for children with food allergies and overweight.
Speech therapist Esmir Kazimova, who has practice in Azerbaijan and Turkey, writes about the need for speech therapy work with children in their first year of life.
In an article, psychologist Ilya Muzyukin raises an important topic. He writes about what autostimulation is, how it affects the development of the child, and how parents should respond to autostimulating behavior.
Another psychologist working in Downside Up - Vera Stepanova - recommends an interesting book to readers, which will be interesting for all parents to read.
Two materials in this issue are devoted to the physical development of children with Down syndrome. One of them is about adaptive physical education classes organized in Moscow, and the other is about the section on adaptive karate from Naberezhnye Chelny.
The magazine also published useful articles about the first books for independent reading and about the American experience in teaching teenagers and adults with Down syndrome digital literacy.
Thanks to everyone who sends us letters, photos and reviews! We are always glad to cooperate with you!
We hope that the restrictive measures related to the spread of coronavirus infection and forcing us to switch to a remote format of work will soon be lifted. And then we can send out a printed version of the magazine to all its subscribers.
Do not be sick and be in touch!

Downside Up took 14th place in Russia's first charity fund rating

The RAEX rating agency (RAEX-Analytics) together with the Association of Rating Compilers (ARC) prepared a pilot rating of charitable non-profit organizations (NPO). The rating characterizes the level of partnership potential of charitable organizations: their financial, organizational, methodological, media opportunities, as well as their authority regarding other comparable organizations.
The rating included 293 NPOs, the total amount of receipts in which in 2018 amounted to 44.8 billion rubles (the rating of fundraising charitable NPOs was 213 NPOs and 19.2 billion rubles, the rating of corporate and private charitable NPOs was 80 NPOs and 25.6 billion rubles respectively). According to RAEX, this is about 90% of total donations to organized charity in Russia.
“The rating may become one of the factors contributing to the development of this sector, which is extremely important for Russian society,” comments Dmitry Grishankov, CEO of RAEX. - This is the most convenient positioning tool for leading charities. It will also help make rational decisions for both donors and potential partners of a charitable NPO. Finally, it will contribute to increasing the transparency of the sector and solving the problem of “toxic” charity. ”
The rating included Russian NPOs, the proceeds of which in 2018 exceeded 10 million rubles, carrying out charitable activities in one or more of the following areas:
- charity medical care;
- support and adaptation of socially vulnerable groups of citizens;
- education and science;
- ecology and animal protection;
- sport;
- art and culture.
Due to the specifics of the activities, the rating did not include funds, NPOs associated with religious organizations and law enforcement agencies, local community foundations, and organizations that position themselves as structural units of international charitable foundations and use their public names. Also, the rating did not include charitable foundations created exclusively to finance individual projects or programs.
The rating was based on three groups of indicators: the scale of the activities of NPO, information transparency of the activities of NPO, public recognition and activity of NPO in the media and social networks.
More details

Time to present oranges: online promotion for the world day of the person with down syndrome

We at “Love Syndrome” Fund love oranges and good traditions very much. Our fund’s annual good tradition is to plant an orange grove by March 21, World Day for Down Syndrome.
Taking part in an online charity action # wevethoughtoforange is very simple:
1. Select the green orange with the desired donation amount and click on it.
2. Fill in the fields on the payment page.
3. After payment, your chosen orange will turn orange, and you will help children with Down syndrome and their families.
4. You can make more than one gift - there are enough oranges for everyone!

New issue of the scientific and practical magazine “Down Syndrome. XXI Century "published

Dear readers!
We are glad to present to you the next issue of the scientific and practical journal Down Syndrome. XXI Century". It is gratifying to note that in it the balance is clearly biased towards practical materials describing Russian and foreign methods, realities, approaches in the field of assistance and support for people with Down syndrome and their families. Moreover, this experience covers almost all age groups and categories of citizens with trisomy-21.
So, on the pages of the magazine, leading Downside Up experts talk about the project of remote expert support and training for parents of young children with Down syndrome and practitioners working with them that they have developed and implemented.
New fund project, a media laboratory, focused on helping special teen-agers and young people, their speech and emotional and personal development. There the guys study as an unusual profession for them as a journalist, improve their communication skills, master the methods of interviewing and comprehend themselves.
The problems faced by adults with Down syndrome and their families, are covered in the material that describes the various forms of accompanying accommodation performed in Finland, including criteria for evaluating such practices and examples of the best of them.
Interesting and useful to any reader, the material covers the problems of all ages, created on the basis of the speeches of the famous American geneticist and specialist in Down Syndrome B. Skotko, who summarized a variety of knowledge and practices related to the prevention of Alzheimer's disease.
In an interview with N. Yu. Ivanova with S. V. Beylezon, “The right to work: the opportunity to be busy and necessary” talks about the problem of employment of adults with intellectual disabilities and the experience of organizing socially useful daily labor employment using the example of the inclusive “Chest” workshops.
And also, Downside Up experts share their experience in long-term planning for the development of NCO, development of project activities and principles for evaluating the effectiveness of programs implemented by the organization. Measuring results and evaluating are the necessary conditions for the development of social agents, which make it possible to improve the lives of those whom they help.
Besides experience and practical approaches, we present to your attention scientific materials on medical and psychological problems, talk about current cultural events and the creative achievements of people with Down syndrome, and help you navigate the specialized literature and current events in this area.
The electronic version of the magazine can be found now by clicking on the link: https://downsideup.org/ru/catalog/doc/zhurnal-sindrom-dauna-xxi-vek-no2-...
It is expected that a fresh issue from the printing house will be received soon and distribution to specialists will be organized.

New Year 2020 in Downside Up

Bright Christmas costumes, a tree that was magically lit every day of the festive week, fairy performances, New Year's tea parties, round dances, gifts presented by Ded Moroz and Snegurochka. New Year's holidays at Downside Up Fund are for all participants of the fund's programs: from toddlers attending adaptation groups, older children from supportive education and school preparation groups, and children who come to us for occupational classes passed all week.
New Year is a family holiday, so mothers, fathers, grandparents, brothers and sisters also took an active part in all the activities of the fund: together with their children they worried about the characters in the performances, helped to go round dances, called Ded Moroz, New Year's costumes deserve special attention, which they prepared for the holiday.
Artists of the theater "Miracles under the umbrella" presented to young spectators the first tale. Their puppet show about a trip to the North Pole with a bear cub Umka and his friends is an interactive story, in which children became full participants. During the performance they were covered by a snowstorm, they saved a frozen bird, warming it with their breath, and together with puppet friends they decorated the Christmas tree.
Vladimir Fateev, actor of the “Miracles under the Umbrella” theater: - This is not the first year that we have been visiting Downside Up with our performances, because this is the most grateful audience, the kindest, and most wonderful. The guys, of course, are great fellows, they amazingly joined the play, it is simply amazing how sincerely they perceive everything that happens on the stage: they respond to our heroes, talk to them, rejoice at their successes, or are upset when they have trouble.
Lyubov Rumyantseva, actor of the “Miracles under an umbrella” theater: - The most favorite moment in the performance for us is the gratitude of the audience when they thank and hug not us, but our puppet heroes - it's great. So, we were able to help them believe in a miracle, the main artists for them are our puppet characters.
The real winter detective story was prepared for children by Downside Up teachers. Teachers are the most sensitive actors, they tried to arrange a bright and emotional show for their viewers. They helped the children look for the nose lost by the snowman in the forest. The search was accompanied by hide and seek under a multi-colored tent, a game of soft snowballs, dancing, spell “The Christmas Tree Burn!” and meeting with Ded Moroz. The New Year story for the children who will go to school next year was no less exciting.
One of the favorite components of all the matinees of the fund is a photo session with the main magician of the holiday. Understanding what children like best: talking with Ded Moroz, hugging him or receiving a gift from his hands is not easy.
For the first time this year, young members of the theater workshop of the fund, employees of the two Funds “Love Syndrome” and Downside Up and their friends performed on the same stage. New Year's skit was more like a big gala concert. The musical group “Russian Souvenir” from boarding school No. 31 opened it. Musical numbers prepared by the participants of the theater studio were replaced by poetic, dance and stage. A separate place in the concert was taken by a joint theatrical performance. The performance, based on the fairy tale “The Snow Queen”, in which the main roles were played by teenagers-studio theater workers and fund employees, was accompanied by ovation and was really liked by all the guests of the holiday. Rehearsals lasted a month, costumes, decorations - the work of a large and friendly team.
This year's New Year's theatrical skit took place on the stage of the Russian State Social University (RSSU). University staff are good friends, partners and colleagues of Downside Up and fund “Love Syndrome ”, helping to make the lives of people with Down syndrome better.
Anna Portugalova, director of the Downside Up Fund: - I want to say a big thank you to the Russian State Social University. We are doing so much good and wonderful together with the Russian State Social University. In particular, this year, colleagues made a huge contribution to the first large-scale football competitions for teams with people with Down syndrome. Now the RSSU has a training program for trainers and we wrote a book together. The university helps us all the time, we are very glad for such a fruitful cooperation.
Oksana Savkina, Deputy Head of the Organization and Admission Office of the Russian State Social University: - I watched your holiday. It is very cool, you are so happy and very talented. I would like to wish you a Happy New Year and wish you new success! We are always glad to see you.
Also, Oksana Savkina presented a kind of New Year's gift to the audience and participants - she invited the children and their parents to meet with the dean of the university, where they will talk in detail about the professions that can be obtained at the university, as well as get to know potential employers.
At the end of the holiday week, a New Year's party was held for teenagers attending daytime groups, during which the guys not only received gifts, but also created their own, played New Year's games and danced to the disco from the heart.
A busy holiday week charged everyone with a good mood and faith in miracles for the next year.
The Charitable Fund Downside Up and “Love Syndrome” Fund express special gratitude for the gifts given to the companies: Amway, Mattel, Talos Construction LLC, “Iceberry TD” company for a sweet treat to all participants of the New Year trees, Qiwi Company for a perfectly organized holiday for children and their parents and Orica CIS for creating a New Year’s atmosphere in the fund.

DOWNSIDE UP HAS BECOME FINALIST OF RUNET AWARD IN THE NOMINATION “FACEBOOK COMMUNITY”

On December 12, 2019 a festive ceremony of XVI National award prize distribution for contribution to the development of Russian segment of Internet “Runet Award” took place in the Pashkov’s House on Vozdvizhenka street. Downside Up was competing in nomination “Facebook community of the year” and became one of top-10 internet projects. Downside Up took the 2nd place by the results of experts’ council vote.
“Runet Award” is the most important award in Internet in Russia. It is a national award in the area of high technologies and Internet which is conferred to the leading companies for their prominent merits.

ANNA PORTUGALOVA, DIRECTOR OF DOWNSIDE UP FOUNDATION, BECAME ONE OF THE WINNERS OF THE CONTEST OF PROGRAMS AND PRACTICES IN THE SOCIAL AND CULTURAL REHABILITATION OF DISABLED PEOPLE

More than 250 citizens and organizations who have successfully implemented socially important projects in the area of social and cultural rehabilitation of disabled people in 2018-2019 took part in the open contest of programs and practices. The main goal of the contest is to promote active involvement of disabled people in social life, development of their creative and intellectual potential, formation of socially active personality.
Requests were gathered in seven topics disclosing main tasks of social and cultural rehabilitation of disabled people. Director of Downside Up charity was awarded a second degree diploma in the nomination “Creativity without borders”.
Festive ceremony of awarding the winners took part in All-Russian kids center “Orlenok”. The awards were handed by the Head of the Commission of the Civic Chamber of the Russian Federation on support of families, mothers and children, Honoured Artist of the Russian Federation Diana Gurtskaya.
The contest was held by the Commission of the Civic Chamber of the Russian Federation on support of families, mothers and children, the Center of Social and Cultural rehabilitation of Diana Gurtskaya with the support of Ministry of Labor and Social Care, Ministry of Education, Ministry of Culture, Department of Labor and Social Care of Moscow.

DOWNSIDE UP TOOK PART IN THE ANNUAL GENERAL ASSEMBLY OF EDSA

Annual general assembly of European Down sy гтшndrome association (EDSA) takes part in Rome in November. The topic of this year’s meeting is “Assisted living of people with Down syndrome”.
EDSA unites organization from European countries striving for making life of people with Down syndrome and their families better. One of EDSA’s goals is to share best practices and to support each other with information and experience.

This year the annual assembly gathered 31 people representing 31 organization from 25 countries. In the course of the assembly meeting they discussed experiences of European countries in assisted living project.
Tatyana Nechaeva, director of Family Support center, and Yulia Lentieva, head of the program of assisting school children and teenagers with Down syndrome, spoke about the activities of Downside Up.

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