Russian language site:  

Education

You are here

DOWNSIDE UP TOOK PART IN THE ANNUAL GENERAL ASSEMBLY OF EDSA

Annual general assembly of European Down sy гтшndrome association (EDSA) takes part in Rome in November. The topic of this year’s meeting is “Assisted living of people with Down syndrome”.
EDSA unites organization from European countries striving for making life of people with Down syndrome and their families better. One of EDSA’s goals is to share best practices and to support each other with information and experience.

This year the annual assembly gathered 31 people representing 31 organization from 25 countries. In the course of the assembly meeting they discussed experiences of European countries in assisted living project.
Tatyana Nechaeva, director of Family Support center, and Yulia Lentieva, head of the program of assisting school children and teenagers with Down syndrome, spoke about the activities of Downside Up.

DOWNSIDE UP EXPERTS TOOK PART IN THE II ALL-RUSSIAN CONFERENCE “BEST PRACTICES AND ROLE OF NGOS IN TAKING CARE AND WELL-BEING OF CHILDREN”

The II All-Russian conference “Best practices and role NGOs in taking care and well-being of children” was organized by the Fund of Presidential grants.
Aleksander Borovykh, strategies department of Downside Up, gave a speech at the discussion panel dedicated to skills and best practices of NGOs in social results evaluation, analisys of charities’ beneficiaries feedback.

Aleksander Borovykh shared his experience and workings of the foundation in evaluating social results of the foundation’s activities.
The three-days conference gathered more than 150 representatives of NGOs and experts in the area of social orphanhood, taking care of children and supporting them. More than 6000 participated in the conference virtually.

DOWNSIDE UP HAS ORGANIZED NEW REFRESHER COURSE FOR PROFESSIONALS

Downside Up foundation organized a refresher course for speech therapists. The 5-days long course “Development of speech of children with Down syndrome of pre-school age” was visited by more than 30 professionals. Some of them are young professionals and others are already experienced specialists who came from Moscow as well as from different regions of Russia. More than 500 people visited the course virtually.
For the first time, this year the course was more intense than usually and took only 5 days. This idea was boosted by the results of the poll of participants of educational program led by the strategies department of the fund. The pollees told that they would prefer a few-days course instead of coming for tutoring once a week during one month. Therefore educational center of Downside Up decided to change the format of their courses

Teenagers with down syndrome learn to care for animals

For the second year in a row, teenagers with down syndrome came to the centre for pet nutrition studies to help their employees in their daily work and, of course, to communicate with its furry inhabitants. The centre contains about a hundred dogs of different breeds; small chihuahuas, a huge Central Asian shepherd dog, poodles, pomeranians and many others. The dogs welcomed the guests with joyful barking!

Children were positioned in pairs and went to the work sites under the leadership of skilled experts. Their duties included the care of the dogs, cleaning of the territory, walking and even basic animal training. Volunteers washed dogs, combed the fur, poured water in jugs, washed the cages and cleaned the area. Then the handlers allowed the children to take the dogs on a leash and ordering them to perform various commands.

It is impossible to describe how happy then children looked at this moment! It is difficult to come up with a more effective reward for their voluntary work contribution at the centre. But the guests were in store another surprise: the celebration in honour of the birthday of the dog-symbol of the Centre - a huge good-natured Central Asian shepherd named Yasha, who turned 11 years old. In memory of Yasha photos with the guests were taken and our children drew pictures on the pavement with chalk. To end the day, everybody sat at the table with festive treats.

A girl with Down's syndrome opened the FIFA World Cup

It happened! A unique event in the world of sports! For the first time in history, the World Championship in football FIFA 2018, which takes place in Russia, was opened by Angelina Makarova, a 12-year-old girl with Down Syndrome. Trust fund "Love syndrome" as an accompanying judge went on the field with captains of national teams and together with the arbiter defined the roles teams of Russia and Saudi Arabia in the opening match of the world championship.

Angelina studies in the 5th form of the Moscow school, she is actively involved in sports. She has a second youth category in swimming. Lina is the winner and prize-winner of all-Russian and city competitions for people with Down's syndrome in the category of LIN, the prize-winner of the Special Olympics games in individual standings on the short track. Angelina loves football since childhood. Twice a week she goes to the football team, where dozens Other children with Down's syndrome under the leadership of Alexander Sergeevich Makhov, dean faculty of physical culture RSSU, are engaged in football.

For 2 years the social program FIFA "Football for Hope" in our country supports the education of children and adolescents with Down Syndrome of this game. Football teams for children with Down syndrome - the first Downside Up, Love Syndrome and Russian State University.

Earlier, Angelina became the heroine of the photo exhibition # FOOTBALLVOBLAGO, which now takes place in International Airport "Sheremetyevo" and will finish on July 31. She and the other guys with Down's syndrome from the football team became the protagonists of the photo exhibition along with the players from the Russian national team and several football clubs, football legends, coaches and sports commentators.

The exhibition is held within the framework of the All-Russian Charity Project # FOOTBALLVOBLAGO, based on the idea of ​​the social importance of football, its developmental and unifying mission. The funds raised during the project will be used to create football in the regions for people with Down's syndrome and the organization in 2019 of open competitions on mini- football in Moscow.

Teenagers with Down syndrome went on a tour of the Danone factory

Teenagers attending vocational guidance and theatre workshop in the “Downside Up Charity Fund” went on a parent-guided tour of the Danone factory located in Lyubuchany village near to Chekhov.

Young guests were warmly welcomed at the factory. Before the tour, they watched the film about safety rules on the factory together with the guides Nadezhda and Ksenia. 26 participants made up two groups – one group visited production facilities while the other was invited to product tastings and master classes.

We were pleased that much attention is paid to safety and sterility on the factory. At the entrance the guests were asked to take off all jewelry; each group member was given a disposable cap, a robe, and special shoes. Then everybody washed hands with a washing liquid in a special room. It is noisy on the factory, so head-phones are a must. They protect ears and allow listening to what the guide says. Young people watched the process of packing ready dairy products into glasses and bottles.

Afterwards everybody went to the master class. The guide told why yogurts are good for health. Then came the tasting. Later on, one of the teenagers’ mom shared her impressions: “The most amazing for me was the fact that Alesha enjoyed eating fruit-flavoured yogurt. It was only with chocolate that he ate before.”

During the master class the guests could design a package and make a yogurt by their own recipe. The guests were given plain yogurt, cans with different jams, and empty bowls, they could mix different flavours and taste the result. After that, everyone created his/her own package design with the help of paints and brushes. The tour lasted for almost three hours, but this time passed very quickly.

Downside Up took a part in a conference on problems of social adaptation of people with Down Syndrome

A press conference, confined to March 21st, “World Down Syndrome Day: problems of social adaptation in Russia” took place in Moscow. Participants discussed problems of development and social adaptation of children with Down Syndrome, programs of early intervention and inclusive education, perspectives of social adaptation in Russia.

A head of the charity foundation “Downside Up” Anna Portugalova spoke on complex system of support for people with Down Syndrome and their families and shared research results made by the foundation. She spoke about problems that families face in different periods of life and discussed the need to build an effective integrated support system for people with the Down Syndrome and their families.

At the same time, Anna stressed out that over the past 10 years, there have been many positive changes thanks to the efforts of non-profit organizations, including parental ones, to the efforts of the government, and noted a positive active role of media in this process. She also warned to avoid other extreme situation: showing possibilities of people with Down Syndrome one cites successful example and may create false feeling that there is no need to create conditions for including people with Down Syndrome into society. Everyone has different possibilities and even behind the most successful example stands hard work and support of specialists.

Children with Down syndrome have got acquainted with the work of the Fire Service

Children with Down syndrome visited Fire Station No. 4 in Moscow. The guys and their parents were shown the firefighters on duty, where they live while on standby duty, how they receive fire-alarm calls and what tools and equipment they have.

Young visitors also were told how to put out a fire properly and how to behave upon detection of fire. The biggest excitement and emotions were from a photo session in a real fire truck and splashing around under water jet spray on a hot summer day.

Teens with Ddown syndrome participated in «Volunteer day»

Children in ward of «Downside Up» charity fund participated in «Volunteer day» under the auspices of companon animals`s nutrition Center located in Moscow satellite town Lukovicy. All cynologists, vets and office staff of the Center welcomed «sunny» volunteers.

Founded in 2009 in Lukovicy the Center today is a home for little under one hundred different breeds of dogs, such as tiny chihuahua, central asian ovcharka, poodles, spitz and others, popular among dog fanciers. Dogs of small breeds live in a modern one-floor building with offices, for staff only rooms, and a big hall cabined off for multiple «appartments».

«For hundreds of thousands years people live under the same roof with companion animals. They make our world a more harmonious place to live in, and people need that cohesion» - welcomed guests acting director of the Center Tatyana Belyavskaya.

Two by two under the guidence of experienced personel children were off to water dogs and cleaning. The most experienced volunteers had to scrub and flea dogs in special hairdressing room.

The day finished with exchanging of gifts. Nadezhda Yakovleva, the lead specialist of «Downside Up» charity fund, presented staff of the Center with desk loose-leaf calendars pictured with drawings of «sunny» kids. Tatyana Belyavskaya in return presented children with merit badges of Cynoligists Assistent.

Downside Up took part in the round table discussions on the occasion of world down syndrome day

Charitable Fund “Downside Up” took part in the special event dedicated to World Down Syndrome Day and organized by inclusive theater project “Interaction” in cooperation with New Space Theater of Nations.

Downside Up’s pupils participated in inclusive training for actors led by Boris Pavlovich, art director of socially educative department of Tovstonogov State Academic Bolshoi Drama Theater of Russia. A round table “Interaction Between a Painter and a Disabled Person” was held in the evening. Participants discussed the following questions: what do we mean by inclusion in the arts and how can it help our society to learn to recognize other people? Can this kind of special theater catch the interest of a viewer, not related to the “problem”? What can help this social project to become commercially viable, and special artists to get paid?

Nikolay Ilnitskiy, director at Downside Up’s Drama Studio was the speaker of this round table and shared how shadow play help children with Down syndrome to express their feelings, to increase their self-esteem and confidence and to socialize.

Pages