Russian language site:  

Down Syndrome

You are here

Downside Up continues its programme for non-commercial organizations with support of the Ministry of economic development of the Russian Federation

Downside Up Charitable Fund continues to carry out its charity programme for regional NCOs that support families raising children with Down syndrome. Downside Up has carried out the project “Improving organizational and financial sustainability of regional socially-oriented non-commercial organizations supporting children with Down syndrome and their families. Programme extension” with support of the Ministry of economic development of the Russian Federation since 2012.

According to this programme more than 40 NCOs have been trained for three years. Staff members of these organizations and representatives of parent associations have participated in webinars, trainings, conferences and study tours to Downside Up.

As a result “Charity Sports” project have been launched in ten cities while it's events have become annual. Partner relationships have been established with governmental bodies and institutions, as well as businesses, and now a lot of them support families of children with Down syndrome on a regular basis. Involving media in the events carried out in the framework of the programme helped draw attention of the society to the issues related to people with Down syndrome. So, more young children with Down syndrome and their families managed to receive support! The new two-year long cycle of the training programme includes online and face-to-face on-site training with the usage of the gained knowledge and experience.

A charity concert in support of Russian children with Down syndrome was held in New York

A charity concert was held at The Consulate General of the Russian Federation in New York on 27th March. A part of the money raised will go to Downside Up to support children with Down syndrome in Russia.

Musicians from different countries including Japan, Estonia, Ukraine, Georgia and the USA took part in the concert. The programme included Peter Tchaikovsky`s works who is regarded as one of the symbols of Russian culture. American celebrated Soprano Monique McDonald prepared the aria from “The Queen of Spades” for the concert in Russian language. “It was hard for me, she says, I interpreted every word and tried to pronounce them correctly. This language is the language of music that unites us and gives us the chance to help others”.

Cooking class with Tupperware Inc.

Today Tupperware Inc. held a cooking class for our children. Under the guidance of the chef, the children learned to cook three summer courses: funny sandwiches, a "dynno-strawberry" drink, and a fruit salad.
All products and utensils for the class were provided by Tupperware. The company also presented gifts to the children. The children in return gave souvenirs, made ​​by the kids at DSU. The class ended with a friendly tasting, during which everyone was treated - children, parents and teachers.

We would like to shout out a huge thank you to Tupperware Inc.! What a great idea, and a wonderful example of active charity!


“A visit to Downside Up, where we saw parents bring their little children to a junior group learning session was enough for us to decide to take our child home. We rushed immediately to collect all the necessary documents to take our daughter home. She was six weeks old then…And all these years Downside Up Early Intervention centre has been the only place where we received help". Ludmila Kirillov, the mother of a 6-years old girl Nika.

There is hope specialists in maternity homes will no longer advise parents to abandon children with Down syndrome – we wrote about it in our previous issue. But is this really enough for families to have confidence in the future? It is the lack of objective information and early intervention which makes parents so unsure of their capabilities to raise a special needs child. More than once we were witness to parents’ changing their mind and refusing to abandon after they were given support and told their children had future.
The Kirillovs are only one of the 3700 families registered on Downside Up programs.

Please make a donation and help us support the families of children with Down syndrome.

£12 is the cost of special literature package for families of new-born children with special needs;
£27 is the cost of a session with a psychologist for parents;
£32 is the cost of a home visit of an early intervention specialist to a family of a 16-months old child.

Let every child go home with their families. Thank you for your generosity!

EXTRA MILE: Iron wills and open minds

Mud, rain, waist deep water, steel, aluminum, bikes ... This is not an everyday course, even for seasoned extreme sports fanatics. On the weekend of September 7th, was the first race of the "Deloitte» Extra Mile - 2013". Many of the participants were not even extreme sports athletes, but everyday office workers! The weekend resulted in joyful fatigue, positive emotions, and 850,000 rubles collected for DSU programs.

This year's competition was attended by 40 teams. Adventurers conquered the track, which was considered far from easy by most. The course consisted of an orienteering terrain and obstacle course, as well as a cyclecross, then to top everything off, was the rafting competition.

Many thanks to the "Deloitte" company for hosting the event! Also thank you for the support and active participation of the other companies involved: "PepsiCo" and "Renaissance Insurance". We are looking forward to the next Extra Mile race!

"Thank you for the opportunity to participate in sports charity projects! As always, everything was fun, and all together very interesting! We competed for prizes by performing the following tasks: orienteering (you had to run through the woods and use an electronic key at check points); cycling (the same, only led + bonus mission - to climb on a rope across a river with a bike in your hands!); the encounter (solve logical questions looking for hidden codes throughout the park, guided by photos and text prompts). Finally the most interesting and "wet" job - rafting! Collect a raft made of seven boards and three fairly short cords, take the oars and paddle through a pond, floating about 400 meters. A big thanks to my team "ATVs"! We won third place among 40 teams! (Vladimir Ponomarev, the "PepsiCo" company).

The 18th Annual Charity Sports Bike Ride

The 18th Annual Charity Sports Bike Ride to aid children with Down syndrome finished on the 25th of August in Vasilievsky Spousk, Red Square.

The Charity Run was organized by Downside Up Charitable Fund.

The principle aim of the Bike Ride is to raise funds for early intervention programs for children with Down syndrome and to call public attention to individuals with Down syndrome.

More than 250 bikers, both private individuals and corporate participants, crossed the finish line. The total amount of donations made by corporate and individual participants was 6 million 920 thousand rubles.

After two days of racing across the Kaluga region, where they stayed for the night, the bike ride participants cycled along the Moscow River embankments from Luzhniki to Red Square. On that final leap along the Moscow river embankments, a large group of cycling fans who support our cause joined the race, and our ranks more than doubled. A group of famous sportsmen were at the head of the peloton: the world champion sprinter in 2013 Denis Dmitriyev, a 6-fold European champion and the 2011 Russian champion Anastasia Voinova, a European champion in triathlon Natalia Sila-Novitskaya, and the senior trainer of the Russian national triathlon team Andrey Goudalov.

We had participants from many countries, age groups and professions. This year it was the 7th bike ride of Henry Thompson, a Russian teacher, who came all the way from London in order to take participate in the bike ride. Three young men with Down Syndrome - Andrey Vostrikov, Stepan Bezroukov and Timur Ibalduyev cycled a 180 km route, demonstrating their unlimited potential. Andrey is an all-round World champion in gymnastics among special needs individuals and a gold medal winner at 2011 Special Olympics Summer Games in Athens. Sport is a hobby for Stepan Bezroukov. This was the first serious race for the young Timur Ibadoulayev, whose perseverance impressed the other cyclers.

Traditionally, parents of children with Down syndrome also take part in the race. As the bikers rode into Red Square, they were greeted by the heroes of the day - children with Down syndrome. The children cycled their traditional 50-metres race across the cobblestone Red Square to cheer the intrepid bikers.

The children’s race was followed by an awards ceremony and a gala concert.

Winners of team competitions:
Amateur League
3rd place – Boeing Beta team
2nd place – PepsiCo Adrenalin Riders team
1st place – Boeing-Gamma team

Corporate League
3rd place – Boeing-Alpha team
2nd place – PwC team
1st place – JamilCo team

Special nominations:
“The fastest participant” – Denis Putintsev (HSBC team)
“The fastest female participant” – Ekaterina Bogatyr (PepsiCo-Agusha team)
“For team spirit and openness” – JamilCo
“For ferve and singulatity” – Shell
“For courage” - Yekaterina Dmitrienko (PWC)
“Best fundraiser team” - PepsiCo
“Best fancy dress” – Ludmila Kirillova, mother of a Downside Up graduate
The prizes were provided by JamilCo, Craft, Electra, RunBike, Finam Radio, Bigwall, Kinaree Thai Spa, VelMedCosmetics c-ny, Yves Rocher, Bouchee confectionery, and Lencom Theatre.

Teenager with Down syndrome conquers everest

Unusual and inspiring news came to us from abroad: Eli Reimer is one of the first people with Down syndrome, and possibly the first American teenager to climb the highest mountain in the world. For two weeks he climbed to the stunning height of 5300 meters.
When reporters asked him if he though the climb was difficult (a climb which, even for an experienced climber to climb - is often considered difficult), with a broad smile, he replied: "No". The teen's father said that before they accomplished this feat, they consulted with doctors and physicians, whom entirely supported this idea. "We closely followed his breathing, blood pressure, oxygen saturation level, as he climbed up the mountain" - said Justin Reimer. "And I want to tell you that it is his stamina and desire to conquer the summit that was for us a real example," - said the father, who was touched.
Read the details on the website: /