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Children with Down syndrome have got acquainted with the work of the Fire Service

Children with Down syndrome visited Fire Station No. 4 in Moscow. The guys and their parents were shown the firefighters on duty, where they live while on standby duty, how they receive fire-alarm calls and what tools and equipment they have.

Young visitors also were told how to put out a fire properly and how to behave upon detection of fire. The biggest excitement and emotions were from a photo session in a real fire truck and splashing around under water jet spray on a hot summer day.

Teens with Ddown syndrome participated in «Volunteer day»

Children in ward of «Downside Up» charity fund participated in «Volunteer day» under the auspices of companon animals`s nutrition Center located in Moscow satellite town Lukovicy. All cynologists, vets and office staff of the Center welcomed «sunny» volunteers.

Founded in 2009 in Lukovicy the Center today is a home for little under one hundred different breeds of dogs, such as tiny chihuahua, central asian ovcharka, poodles, spitz and others, popular among dog fanciers. Dogs of small breeds live in a modern one-floor building with offices, for staff only rooms, and a big hall cabined off for multiple «appartments».

«For hundreds of thousands years people live under the same roof with companion animals. They make our world a more harmonious place to live in, and people need that cohesion» - welcomed guests acting director of the Center Tatyana Belyavskaya.

Two by two under the guidence of experienced personel children were off to water dogs and cleaning. The most experienced volunteers had to scrub and flea dogs in special hairdressing room.

The day finished with exchanging of gifts. Nadezhda Yakovleva, the lead specialist of «Downside Up» charity fund, presented staff of the Center with desk loose-leaf calendars pictured with drawings of «sunny» kids. Tatyana Belyavskaya in return presented children with merit badges of Cynoligists Assistent.

Downside Up took part in the round table discussions on the occasion of world down syndrome day

Charitable Fund “Downside Up” took part in the special event dedicated to World Down Syndrome Day and organized by inclusive theater project “Interaction” in cooperation with New Space Theater of Nations.

Downside Up’s pupils participated in inclusive training for actors led by Boris Pavlovich, art director of socially educative department of Tovstonogov State Academic Bolshoi Drama Theater of Russia. A round table “Interaction Between a Painter and a Disabled Person” was held in the evening. Participants discussed the following questions: what do we mean by inclusion in the arts and how can it help our society to learn to recognize other people? Can this kind of special theater catch the interest of a viewer, not related to the “problem”? What can help this social project to become commercially viable, and special artists to get paid?

Nikolay Ilnitskiy, director at Downside Up’s Drama Studio was the speaker of this round table and shared how shadow play help children with Down syndrome to express their feelings, to increase their self-esteem and confidence and to socialize.

Downside Up and RSSU have signed a Memorandum of Understanding

Charitable Fund Downside Up and Russian State Social University have signed a Cooperation Agreement in the sphere of inclusive education and inclusive adapted physical education. Anna Portugalova, Downside Up CEO, and Natalya Pochinok, the RSSU Rector, subscribed their names to the Memorandum.

The participants of the ceremony pointed out the importance of understanding and gave high marks to the perspectives of the future cooperation in scientific research, education and consultations.The aim of the collaboration is to establish the infrastructure of social adaptation, integration, rehabilitation and assistance in improving the quality of life on basis of collaborative projects and events.

Anna Portugalova told about the meeting afterwards: “Together with the RSSU Rector Natalya Pochinok we discussed the plans for our closest cooperation. They concern football training lessons for the children with Down syndrome who attend Downside Up within the framework of “Charity sport” project and developing a technology to be transferred to trainers. We also touched the theme of joint educational programmes for social workers and psychologists. I may say that the agreement between us is both a high honor and invaluable help in our work. The resources of the largest social university in our country will help our fund to transfer our many years` experience to professionals and students. The cooperation with RSSU is the recognition of our achievements as well. I`m sure that our collaboration will help to fulfil our mission which is improving the quality of life for people with Down syndrome. We may try to make our long-cherished dream come true by combining our efforts”.

“A Memorandum of Understanding is very essential to us, - Irina Menshenina, DSU development director, emphasizes. “It gives us support from the scientific society in the sphere of transferring our long-term experience which we share now as practicians. To help this experience become significant for professionals, it should be supported with methodologies based on research which is a key moment for higher education”.

Four-footed colleagues and the career guidance program for people with Down syndrome

Downside Up Charity Fund and Mars Company represented by Pedigree Trademark did the first Russian research in the field of career guidance for people with Down syndrome. It allowed them to get basic knowledge about caring for dogs.

The experiment started in May 2015 with the preparation stage up to November. It included 5 participants of the project to come twice a week to a canine centre and a hotel for dogs Hors located near Moscow. As animals feel more lonely being far from their masters, it is there where they need special care. The young people learned how to work, how to be responsible and independent when caring for dogs. Therefore this helped to find one solution for two problems.

A specially designed program started with “the attentive adaptation”, when participants were supported by dog specialists and psychologists all the time, who also helped to control all stages of work. Then came the time for “the free adaptation”, when the young people got more freedom as they knew the animals, their needs and what they had to do.

“17 years ago the main task for our fund was children with Down syndrome staying with their families, their education and socialization. There were so many parents who abandoned them as there didn`t know what to do with their baby. Today we need to go further and develop the possibilities for the realization of their personal potential in career and society”, -Irina Menshenina, Development Director says.

Downside Up specialists from Russia learn british experience

A group of Downside Up specialists from Russia (Moscow) together with their colleagues from Yekaterinburg have recently made study tour to the UK. Russian teachers have already made several visits to the UK, enjoyed fruitful meetings with British colleagues for sharing new ideas and experiences, for analyzing different educational programs and approaches. This time their main task was to learn more about speech and language development programs for early age, which British specialists use in their work. In the light of the changes in the educational system taking place in Russia today it is very important to analyze British experience: how different types of organisations (state, municipal, non-profit) support families and how they coexist and cooperate. And to look closely at the way the system of family support for children with special needs is implemented in the UK.

Tatiana Nechaeva, director of Family Support Center of Downside Up says: “We knew beforehand that we would see a more favourable picture of the situation than the existing one in Russia. Early Intervention System exists in the UK more than 30 years and there are no doubts that family-centered care model is the most appropriate model of early intervention for children with special needs. In England children with special needs are not isolated from society: there are a lot of different institutions of early intervention, classes with specialists at training centers and charitable organisations, special nurseries and schools, inclusive institutions and also special classes at mainstream schools are available. Moreover, a child, his or her parents and teachers get full support of specialists regarding a wide range of matters”.

Downside Up’s team has visited the classes on speech development at two non-governmental organisations. One of them is “21 and Co” which conducts its activities at the Langdon Down Centre in Normansfield, where Dr. John Langdon Down lived and worked. “21 and Co” is a charity offering help and support to children with Down syndrome and their families in South West London, Surrey. Its main activities are: speech and language development for children, social and communication skills, support for parents who have recently received a Down syndrome diagnosis for their child, support for brothers, sisters and other family members, awareness-raising activities in the local community.

Another organization - “Downright excellent” was founded by parents of children with Down syndrome about 8 years ago. This organization is also fundraising and conducts speech and language group therapy and communication and social interaction skills development for children of 0 to 9 years old. All programmes are conducted by experienced specialists. In England programmes, developed by Down Syndrome Educational Trust are extensively used. In particular, See and Learn programme, which is the basis for many speech and language therapists from the UK and is a standard for other approaches to follow, depending on a child’s needs. Unfortunately, there are no standardized programmes for children with Down syndrome in Russia.

“Downright excellent” organizes and delivers classes and meetings with families at Golden Lane Campus, which includes primary school, special educational needs school for children with motor problems and Early Intervention Center “Stay and Play”, where children can come with parents, play and also pass the time. Different children, including those with impairments of support-motor apparatus, are close to each other, move freely and play together. Specialists, volunteers and parents are helping them and for children with impairments of support-motor apparatus there is also a massive park of different technical supplies. And everybody feel comfortable! This space in full conformity with such descriptions as “a completely accessible environment”, “barrier free environment”.

“Bird in Bush Community Nursery” – is a municipal nursery and an excellent example of inclusion of young children with special needs with their typically developing peers. This wonderful nursery is a part of The London Early Years Foundation (LEYF), which began as the Westminster Health Society in 1903. The main task of this foundation is to support and to offer high quality education and healthcare services to families with children of early and pre-school age.

During this study-tour Russian specialists have visited the Early Years Center Wandsworth, which offer support to young children of 0 to 8 years who have significant or complex needs or disabilities (including Down syndrome) and their families living in Wandsworth. This Center not only delivers the classes for children but also offers information and practical support to families in finding family support services and trainings, helps to contact with other parents etc. The Early Years Center Wandsworth also offers support in processing documents for getting special support of a child at education institution.

Inclusion of young children with special needs in mainstream nurseries and schools in London is an accurately regulated process of accompanying, including choosing a tutor, visiting specialists of Early Intervention Centers and getting methodological recommendations from them, and also legal support of family if required. For example, voluntary group of parents Positive Parent Action (PPA) offers information and psychological support for families, raising children with special needs.

Not only Downside Up’s specialists from Moscow participated in this study tour, but also their colleagues from Yekaterinburg: representatives of two pilot enterprises of Downside Up in Sverdlovsk region (in Project “Dissemination of family-centered model, developed at Downside up”): Loginova Nadezhda, director of Center of psychology-pedagogical rehabilitation, Zarechniy and Drobakhina Inna, deputy director for educational work of “Rehabilitation center for children and teenagers with special needs”, Kamensk-Uralskiy. And longstanding partner of Downside Up - Tatiana Cherkasova, the chairperson of “Solnechnyie Deti” (“Sunny Children”) parents organization.

Cooking class with Tupperware Inc.

Today Tupperware Inc. held a cooking class for our children. Under the guidance of the chef, the children learned to cook three summer courses: funny sandwiches, a "dynno-strawberry" drink, and a fruit salad.
All products and utensils for the class were provided by Tupperware. The company also presented gifts to the children. The children in return gave souvenirs, made ​​by the kids at DSU. The class ended with a friendly tasting, during which everyone was treated - children, parents and teachers.

We would like to shout out a huge thank you to Tupperware Inc.! What a great idea, and a wonderful example of active charity!

LET ALL THE CHILDREN GO HOME!

“A visit to Downside Up, where we saw parents bring their little children to a junior group learning session was enough for us to decide to take our child home. We rushed immediately to collect all the necessary documents to take our daughter home. She was six weeks old then…And all these years Downside Up Early Intervention centre has been the only place where we received help". Ludmila Kirillov, the mother of a 6-years old girl Nika.

There is hope specialists in maternity homes will no longer advise parents to abandon children with Down syndrome – we wrote about it in our previous issue. But is this really enough for families to have confidence in the future? It is the lack of objective information and early intervention which makes parents so unsure of their capabilities to raise a special needs child. More than once we were witness to parents’ changing their mind and refusing to abandon after they were given support and told their children had future.
The Kirillovs are only one of the 3700 families registered on Downside Up programs.

Please make a donation and help us support the families of children with Down syndrome.

£12 is the cost of special literature package for families of new-born children with special needs;
£27 is the cost of a session with a psychologist for parents;
£32 is the cost of a home visit of an early intervention specialist to a family of a 16-months old child.

Let every child go home with their families. Thank you for your generosity!

Teenager with Down syndrome conquers everest

Unusual and inspiring news came to us from abroad: Eli Reimer is one of the first people with Down syndrome, and possibly the first American teenager to climb the highest mountain in the world. For two weeks he climbed to the stunning height of 5300 meters.
When reporters asked him if he though the climb was difficult (a climb which, even for an experienced climber to climb - is often considered difficult), with a broad smile, he replied: "No". The teen's father said that before they accomplished this feat, they consulted with doctors and physicians, whom entirely supported this idea. "We closely followed his breathing, blood pressure, oxygen saturation level, as he climbed up the mountain" - said Justin Reimer. "And I want to tell you that it is his stamina and desire to conquer the summit that was for us a real example," - said the father, who was touched.
Read the details on the website: http://neinvalid.ru/biografii/podrostok-s-sindromom-dauna-pokoril-everest /

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